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ritaxis: (hat)
Tuesday, April 12th, 2016 04:32 pm
Pathology report came back with a 6 mm tumor in one of the lymph nodes. This puts me in a different world from where I was before.

I'm now in the world of chemotherapy. Next steps are a CT scan (tomorrow) to look for more tumors or seeds, and a cardio ultrasound to determine how much treatment I can take.

If I'm clear of other tumors or seeds, we'll move on to the more aggressive chemotherapy. If I'm not, there are apparently two possibilities: either there's a couple of operable tumors, or there's junk that can't be removed. If the former, more surgery, I think, followed by chemotherapy. If the latter, there's no point in aggressive therapy because it won't remove the cancer completely however aggressive it is. In that case, I get a more conservative chemotherapy focused on controlling the cancer instead. In that case, I will most certainly die of cancer, but it might be a longish time from now. In the former cases, I might die of cancer, but I might live long enough to die of something else first.

If you're having Jay Lake flashbacks, why yes, I am too. At least my kids are grown.

By the way, none of this is secret. If you run into someone who knows me, feel free to tell them. But don't feel obligated to either.
ritaxis: (hat)
Friday, March 25th, 2016 11:18 am
Today I want to talk about multi-tier medical systems.

As of December 31, 2016, I was no longer eligible for Covered California commercial insurance subsidy. As of February 1, 2016 (note the gap, which was structurally my fault for believing the letters I got from Blue Shield and Covered California saying that if I did nothing during open enrollment season I would roll over into an identical plan to the one I was already in), I was enrolled in Medi-Cal (California's own [much better] version of Medicaid/Medicare). This should be wonderful: no fees, no copays, everything goes like clockwork. For me, anyway, because I have that rare situation--I already have a primary care doctor who accepts Medi-Cal (it pays less than commercial insurance so many doctors feel they must limit their Medi-Cal patients or not accept Medi-Cal at all. I am saying this neutrally because the payments are very low and it is very expensive to run a doctor's office on the one hand, but doctors expect a significant degree of wealth on the other).

There is, of course, a problem.

I don't remember whether I complained about this here, but last year Blue Shield spent the last five months denying everything--including things that had gotten pre-approval letters--saying I "wasn't covered," though my fees were promptly deducted from my checking account every month. Every time I called it turned out this was not true. The call center worker would say, first "Hmm, it looks like you're covered in one place and not covered in another place, but the one that says you're covered is the correct one. I'll fix it." The excuse that was given to me was that the Blue Shield computers and the Covered California computers were "out of synch" and the IT department was working on it--two years after the system was inaugurated. My own suspicion is that Blue Shield administration knows about this, understands the implications of it (that many baffled people will end up with effectively no coverage as they pay bills they do not owe), and has allocated their resources in such a way as to let it go on--deniably, of course.

So now that I'm not covered by Blue Shield, they seem remarkably un-eager to let me go. Or Medi-Cal seems remarkably un-eager to accept me. Well, no, they've added me as a patient, but as an "administrative member" who has another entity--Blue Shield--as a primary carrier. This is causing no end of trouble. Palo Alto Medical Foundation, who provides my main health care, has no issue with it, though it does mean they're going to have to do everything twice. But the radiation oncologist and the hand clinic I'll be going to don't belong to Palo Alto, so they want things clear from the get.

People, I have spent hours on this. Never mind that it took me a month to even understand that there was a problem and what it was. I finally got Covered California and Blue Shield in the same phone call at the same time and Covered California told Blue Shield that they did not in fact have me as a client, and Blue Shield took an incident number, and Covered California told me to call the Central Coast Health Alliance who administers Medi-Cal for my area, and I did, (the second time that day), and they said that was fine and I should also call my own county's Health Resources Department. I couldn't get through to them so I left it to another day.

That day was today. They are still showing me-- according to them, the state is still showing me--as a Blue Shield primary. Then they told me that I had to get hold of a paper copy of a termination letter from Blue Shield and fucking FAX it to them and I fell apart and cried and screamed and I am not proud of this but I have cancer and I should not be doing this. I said:this is not fair. Why is it my job? Why don't YOU call Blue Shield? And he said, I'm not allowed. As soon as I'm done with this phone call, I have to take another call. In other words, he's not a benefits worker, he's a call center worker--I thought: so I asked to talk to an actual benefits worker. Nope, he's what I get: he's the benefits worker: there is nobody whose job it is to actually make sure the benefits are correct.

This is one consequence of a multi-tiered health care system. Some people just flash their card and get their care. Other people have to spend hours on the phone and wait for letters that will not come with the prospect of finding a fax machine (do they have those at copy shops? I don't even know where a copy shop is anymore: both the ones I used to go to have closed). I've called the Palo Alto oncology department social worker but I won't hear from her till Tuesday and the surgery's Thursday. Fortunately the radiation won't start till two or three weeks after that at the earliest.

But you know? There's worse consequences.

Imagine if I had been living in one of the states that refused the Affordable Care Act right now.

I might be covered on the Federal Exchange, but I might not be effectively covered. If I was in certain states, I might not have been able to afford the monthly fees, and there would be no kind of version of Medicaid waiting for me. I might be looking for charity health care.

I might die.

So it's a good thing I'm in a blue state, right? Hell of a way to run a country.
ritaxis: (hat)
Wednesday, January 20th, 2016 03:07 pm
I'm probably overthinking this.

So I got a bill from Blue Shield for over two hundred dollars for my first month of 2016. Considering that my original fee had been a dollar a month, and last year's had been $22 a month, it seemed out of line. Granted, percentage-wise it was less of an increase (a bit more than 2000% the first year and a bit less than 1000% the second year)...and of course my income has not risen at all and my other costs keep increasing too.

So I called to straighten it out, and eventually, after a couple of days of bad connections, frightening error messages, and lots of apologetic confusion from the stalwart souls who staff the front lines at the Blue Shield and Covered California call centers, it emerged that I didn't belong on Covered California because I don't make enough money. I was supposed to go to Medi_Cal instead.

California residents will understand my mixed feelings when I got this news. Medi-Cal is free, the coverage is fine...but doctors generally don't take Medi-Cal patients. I mean they flat-out don't, or they say they do "but we're not taking new patients just now." Plus, there's the issue that if I make any money at all, I'll be kicked off again and have to go back to the exchange and find a plan I can afford that will cover what I need.

First things first: according to the website, my primary doctor takes Medi-Cal. So if that works out, I'll be fine.

But let's return to my eligibilty. This freaks me out no end, because: Covered California uses line 37 of the tax return to determine eligibility, and Medi-Cal uses gross income. And if I understood all those people correctly the lower limit for Covered California this year is $16K+something. I can't confirm or correct this number looking around online: it seems to be a secret that you only learn if you dip below it. Meanwhile, according to the letter I got from Medi-Cal, if my income goes above $13,354 a month, I'm no longer eligibile. That's almost the same number: it might be exactly the same number.

However, line 37 on the tax return is the adjusted gross income and it is lower than the entire gross income. Why this matters to me is that my Covered California income is therefore under $10K a year, while my Medi-Cal income is about $20 a month less than the cap. If I get a job or sell a story will I have to change medical coverage again? I was thinking that since my legs work again I could be a substitute teacher. Will I have to change medical coverage during the school year and again in the summer? If I sell one story, I'll be over the limit for Medi-Cal that month but under the limit for Covered California for the year. I'm afraid to ask about it, actually. I considered dropping olut of the system but my barebones prescriptions (5 medicines, the rest are OTC) are four hundred dollars a month without coverage. I've been working towards dropping more drugs, but I can't drop them all.

Can we say it together? SOCIALIZE THE GODDAMN MEDICINE. Save your grandma!

Which reminds me of the thing I think is going on with the right wing: they really, really, really hate their mothers. Everything else derives from that.

On another front, it has rained sixteen out of twenty days here, but we're still running lower than average in rainfall totals and we're still at 67% full in the reservoirs here. It's worse in some areas.