ritaxis: (hat)
Tuesday, June 23rd, 2015 08:43 pm
I noticed I was having vivid dreams: normal in type but more intense. That's fine by me. I also noticed that my limbs and head and toso were engaged in the action of the dreams, sometimes very strong and disruptive. Over the last couple days these jerks have become excessively strong and frequent, several times an hour and hard enough to hurt, But only when my eyes are closed.

Yesterday I took 400mg. This is the  normal limit. The papers I have read suggest problems  at levels above 600mg. But it is just like me to be sensitive to the conservative pain medicine.I already can't use the heavy opioids, So I'll be cutting back my consumption a lot and hoping for the best.
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Wednesday, May 6th, 2015 10:48 am
Last week I read Lisa Goldstein's Summer King, Winter Fool and Noriko Ogiwara's Dragon Sword and Wind Child. I attempted to read Microcosm by Norman Davies and Roger Moorhouse, supposedly a "portrait" of the Polish city Wrocław, and started Echoes in Time by Andre Norton and Sherwood Smith.

Both the books I finished were nice little amusements. They have stories in them that ought to seem biggish, involving the whims of gods and kings and queens, but because they were both sort of stylized and removed from actual life, they seemed small to me. Like pretty toys. I liked them both, though I got a little impatient partway through and wished they would drop the royalist crap. I mean I felt like they were wasting themselves on trivial gods-and-royals stories when all that beauty and passion could have been spoent on something I personally care about because doesn't the world revolve around my tastes and if not why not? But they were fun anyway. Goldstein's book is in a completely new world informed by late Eurpoean nedieval times, and Ogiwara's book is in a magic world not many steps removed from Japan.

Microcosm is unreadable. It's written like one of those breathless magazine survey articles of the sixties, jumbled up and oh god why don't they use any of the actual place names! What the hell! Some of the places names they translate into English and I don't mean those odd Anglicized place names, I mean stuff like "Giant Mountains" and "Snowy Head" and "Cats Hills." Also, "The River." Skipping ahead, I see that they eventually deign to use the names of at least cities and states but they've lost me already.

I was going to say that this was obviously a product of the postwar period because even though the book spans prehistory to modern times the first chapter is about World War Two and of course that would have made sense up to about 1989 because until Solidarnosc Americans thought history stopped in Eastern Europe in about 1950. But the book was first printed in 2002, so I don't understand why the book starts out like this. I recall nopeing out of another Polish history book by Davies too. Unfortunately Polish histories aren't very thick on the ground at my library. What there is--is almost exclusively this guy, and/or books about concentration camps. Which are necessary to tell Polish history but not sufficient. Maybe I'll try it again sometime when my disappointment has had a chance to settle down.

I don't have  much to say about the Norton/Smith yet, since I just started it.

I stalled out on the giant fantasy trilogy my brother-in-law lent me. I feel like I should keep trying because he was so enthusiastic about it. Also I haven't started the Kameron Hurley. But probably next is The Mystic Marriage by our own Heather Rose Jones, and anything that looks fun in the library, and another attempt at Eastern European history. I think I remember seeing some other city histories on the shelf.

cut for medical neepery, not gross but probably boring )
On still another front: I'm hungry and I think I am going to boil some cracked grains in milk. Yes, I get to do that. Because, that's why.
ritaxis: (hat)
Monday, March 10th, 2014 10:38 am
I don't want to take away from the success, such as it is, of the Affordable Care Act. But when they say that the uninsured rate has dropped this much or that much, it doesn't actually mean that the number of people who are getting medical care has risen this much or that much. Down here in the trenches it's still largely chaos. Many of us are nominally covered but aren't actually getting any actual health care covered due to network confusion and the difficulty of finding doctors and other practitioners who can be paid by our new insurance.

As for me, personally, that confusion has cost me at least five hundred dollars, if not seven hundred, as I followed through on medical care prescribed by a doctor who was in-network the day I signed up and who did not discover he was no longer in network until after I had had two visits, a raft of blood tests, and two months of prescriptions. Currently I no longer have a primary care doctor in network and I have another round of prescriptions due. I can renew them and pay for them without coverage (which is probably my best option), skip a month (which is not a viable option for at least two drugs), or I don't know what, because finding a new doctor will take a while.

Also: as an uninsured person who paid cash up front I had certain discounts I do not have as a nominally insured person.

A single payer system would not have done this to me. Just sayin'.
ritaxis: (hat)
Friday, November 15th, 2013 08:53 am
In light of the new guidelines for statin use, and the fact that more people have muscle damage from taking statins than previously thought, it seems like there ought to be better information about preventing, monitoring, and responding to statin-caused muscle damage.

I want to stop right here and acknowledge that statins are good drugs in general. The incidence of side effects, even given that it is much higher than we can really know because of people like me who don't put together their muscle symptoms and statin use, is pretty low compared to the health and longevity effects. They're cheap for what they do, too. I was really reluctant to consider the statin connection when I was figuring out my leg pains. Which probably means that I had years more pain and possibly more permanent damage than necessary. But I'd say to a person who is taking a statin now, that if you develop leg pain that doesn't go away, be suspicious. Do a trial of stopping the medicine. Since the medicine is a long-term, cumulative preventive therapy, you can afford to stop it for a couple-few months and see what happens.

Meanwhile, I have finally found one article that is neither a hysterical, credulous hatchet job nor a dismissive, sweep-it-under-the-rug condescension. It's a little old - 2005 - but it is aimed at physical therapists and it is measured, intelligent, and informative. Here it is.

Unfortunately, what I have not found is an assessment of what happens to people who do get longer-lasting effects, and what is the best strategy for retraining the muscles.

One interesting thing in the article that I thought could have been better explained was the advice to tell patients not to use pain relievers for this type of pain. Since no pain reliever seems to have any effect whatever on my leg pain, I don't take any of them anyway, but I wonder why we're not supposed to. It was in a way almost as much of a relief to give up on pain relievers as it was frustrating, because I already take so many medications (a risk factor for muscle damage with statins, as it turns out: my only other one is being female). Although, these days, most of my medications are actually nutrients. Which sounds good until you think about it.

On a related front, the dog also seems to need anti-inflammatories. Ah well.
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Tuesday, June 19th, 2012 08:14 am
Methylprednisolone dose pack starts with six pills on the first day and then you taper it down to one pill on the sixth day and then quit.  It's the sort of thing your body can get accustomed to and you might suffer for it if you take it a while and then stop (Addison's disease being a possible outcome: that is, it's a corticosteroid, and its presence over time might fool your adrenal glands into not making any of your own), and in the long-term it has heavy side effects like possible psychosis and immune suppression.  So if you're going to use it, you want to get in there, bonk the condition hard, and then get out again, but not too fast, because your body needs some time in order to get the signal that it really was supposed to keep on making steroids of its own.

This is the second time I have done a methylprednisolone dose pack.  I am amazed at how well it works, and highly regretful that it has the heavy side effects and dangers, because dang, the first three days are really, really good.  Let me count the ways!  First, the coughing that I took it for subsided to almost nothing.  As opposed to "can't finish a sentence or do a job of work because can't stop, and my clothes are totally flooded with pee from overwhelmed sphincters")  Second, my brain.  Oh, my brain on methylprednisolone.  What I wouldn't give to have a brain like that all the time.  Perky, alert, active, focused, imaginative, cheery, did I say focused? And my memory, so nice. Why isn't there a drug that does this and doesn't mess you up? (coffee, for some people, I guess, but it makes me sick) Third -- no pain in my legs!  Inflammation is gone, gone, and I can do anything with them.

However, day four and five -- it starts to take a toll on you.  No sleep on night three and four.  And I just felt kind of like -- while my brain was still pretty good -- a crash was imminent.  I am glad to say, on day six, that there has been no crash so far and I slept fine last night.  I did not sleep like a baby (sound until waking up screaming for food or play, I guess that means): but I slept like an old lady who can sleep at night until the old bladder goes "help me!" I am still a bit perky and kind of excited about the no leg pain bit.

Research priority: somebody develop a safer form of this drug so I can live on it my whole life.
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Saturday, November 5th, 2011 10:10 am
The Bad Astronomer tells us that Delta Airlines has contracted to show commercials produced by the anti-vaccination group that sarcastically calls itself "The National Vaccine Information Center."

I wasn't sure how best to contact Delta over this, so I used the customer complaint form. This is what I said:

I have used Delta almost exclusively for travel between Europe and the United States since my son began medical school in Prague. I pay for my own and my son's travel back and forth, and also for his travel to other countries and other continents, where he goes to practice his life-saving learning. But I won't be any longer unless I hear that the anti-vaccination ads are removed from your inflight material.

My family has made a great sacrifice to send my son to school to learn to save lives. It's not an exaggeration. I am a widow in a low-paying job. Every penny we spend has to count. And I will not be spending any of my hard-earned money to support an airline which is helping to convince people to put their children at danger of death. Last year at least nine babies died in California alone of pertussis because they were too young for vaccinations and the disease was passed to them from unvaccinated children or adults. Can you see where it might be especially galling for me -- the mother of a young doctor and a caregiver for infants too young for vaccination -- to buy my son and myself tickets to fly on a flight that lies to parents about this?

I can't believe you would take advertising money from these murderers, whose fallacious claims are rooted in the fraudulent claims of a known criminal (Wakefield, who has been stripped of his credentials and fled his home country to live off the fears of his gullible followers here in the US). I'll be telling everyone I know not to buy tickets for your flights until you stop.

I have had otherwise good experiences with your airline and would be more than happy to recommend your services if it were not for this scandalous complicity with murderous fraud.


I maybe did thr wrong thing by focussing on pertussis because the ads are against flu vaccines. However, any equally strong case can be made for flu vaccines. I got both the latest flu and a D-TAP booster yesterday, by the way. How about you? They're being recommended for everyone, now, not just high risk groups and their caregivers.
ritaxis: (Default)
Wednesday, July 6th, 2011 09:44 am
So I got the word yesterday. The chance that I might have a job at my place (fewer hours, a cut in pay) is gone. The decision is to hire for a five-hour position with no benefits and also to cut my erstwhile coworkers' hours. I don't know what will happen when they have more than six babies at the beginning of the day. But it's not my job to worry about it anymore.

I have an application to get in today for another job halfway across town (no option to walk to work: well, I could, but it's a forty-minute walk and opening, and I really doubt I'm going to leave the house at six-thirty. Well, I could. Maybe. But I won't count on it, because I know myself). There are attractive things about the job though. It deals with a similar community to the one I've been working with, so the sense of mission is there. It seems to have steadier funding than my current job, so maybe I will finally get to have a job that lasts. The posting was a month old, but it happens that it's still open just for this week!

I decided I can't keep paying six hundred dollars a month for health insurance so I'm going to let the COBRA go. So I called the doctor and said I was losing my insurance and what could I do to lower my medicine costs? And he said: stop the trilipix and the benicar: the simvastatin alone might do the trick, and I could take something called losartan instead of the benicar. Everything else, he said, is necessary, and already as inexpensive as it's going to get. Because of the mandated cut in simvastatin dose my last refill will last two months, so that's good. Also I have more motivation to be conscientious about diet and exercise (this making the forty minute walk at six-thirty in the morning and four in the afternoon more attractive: a part of it would be along the levee, which is nice).

I have to arrange to get the house in shape to get a roommate. I've been saying this for two and a half years, but it's really hard to face, for a number of reasons, one of which is, honestly, shyness: it's hard when I imagine getting a stranger in here and pissing them off with my spacy personality, or even worse, getting an acquaintance in here and pissing them off.

I have to look for more expenses to cut. There aren't many. I had started spending a bit more freely this year, on the grounds that it looked like I had an adequate and permanent job, but "spending freely" means very little in my case. I really don't spend much money.

The good news is Emma set a trap last night and there was no rat and the bait was still there this morning. Maybe we got them all. It's hard to believe, what with there being a whole lagoon out there for the rats to come from.
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Sunday, March 6th, 2011 05:17 pm
Reuters has a headline today: "Studies find gene links to world's biggest killer". earlier I was aprticipating in a discussion about assassin/mercenary/thug/serial killer/torturer/executioner protagonists in slash fiction (short version: I'm totally uninterested in them, where "uninterested" means "I'd rather wash dog poop off the floor than read another one of those"). So of course I thought it was another one of those periodic articles where they find a gene that pops up in fifty-five serial killers and the newsies decide that they must have found the gene for mass murder.

But instead, it was one of those articles where they find a gene in a wad of people with heart disease -- and Reuters actually did okay with putting the findings in scientific perspective.
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Monday, December 21st, 2009 01:47 pm
Here is the Doctors Without Borders/Medecins Sans Frontieres yearly top ten list of humanitarian crises.

Seven of them directly involve protracted warfare.